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Posted by seashell on March 03, 2000 at 21:01:27:

In Reply to: Living with Addison's for three years.......... posted by Rhonda Deal on March 02, 2000 at 13:26:14:

re:Rhonda deal, Hi Rhonda. I have'nt been diagnosed with addisons, but feel i have similar symptons. For three years iv'e been suffering from freezing hands and feet, i'm always cold, and when i go in our back yard ,which is a beach i can't take the heat, or hot baths -no more hot tubs for sure.i've gone through dizzy-light headedness (daily) my legs and arms are so weak , i don't feel comfortable driving on the freeway any more,my eyesights terrible--blurry-- and extreme tiredness although dr.s seem to think it's in my head. two months ago i blacked out making dinner and for three weeks my rt side arm and hand have been pis and needles crampy like arthiritis, my neck and jaw hurt, stomach always hurts down to 110 now. mri came out find today they were checking for ms. pottasium level in blood is very high, only thing they could tell me ,i would like to have a addison test, i have alot of heart racing lately also. see dr tue . good luck to you. I was diagnosed with Addison's after a severe crisis in August of 1997. The initial tests were positive. After seven days in the hospital I was retested, this time the levels were low/abnormal, but not positive. My GP put me on florinef .1mg per day to sustain a fairly low/normal BP. For two years, one doc said yes, another would say no. One would give me meds, and another would take them away. After a lot of close calls and miserable days and nights, another GP put me on florinef .1mg per day am, and 20 mg. of cortisone am, and 10mg. of cortisone in the afternoon. I have since gained about 20 pounds, which I have no problem with, but I am not feeling better, if anything worse. I get sick so easily, and so severely that I have to rely on other people to take care of my two children, a 4 yr old boy, and a 10 yr old girl with cp and epilepsy. If I go to the er with a problem, I generally have to diagnose and treat myself to survive the visit.
: The lack of care, and education among drs about addison's is scary.
: I would like to list my symptoms, and if anyone out there can relate, or give me some tips on how to make people understand that just taking meds keeps us alive, but not exactly well would be greatly appreciated.
: This is a long list so please bear with me.
: spiking high temps with or without vomiting
: unable to tolerate heat
: always cold
: stomach pain
: nausea
: migraines
: joint pain
: vision loss/reduction
: unrestful sleep
: exhaustion
: Then there's all the wonderful side effects of the steroids, leg swelling/cramping, osteoporosis(wich has been scanned and confirmed), symptoms of estrogen depletion(even on supplements), terrible PMS, anxiety(wich my gp will not give me anything for), no social life because you are just too tired.
: Please let me know if anyone is out there that feels like I do.
: Bless you all,
: Rhonda


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