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Posted by Blondie on May 08, 2000 at 12:24:16:

In Reply to: Re: Living with Addison's for three years.......... posted by Jill on March 07, 2000 at 17:37:44:

I just found this site, I have been diagnosed for 15 years and on steroids that long. I had symtons for at least 10 years prior. My first crisis was when I was 21 and it was put down to surgical shock. I have had several crisis over the years and surgeries, which present some problems.
I am looking for long term Addisons people, I am going through a crisis right now, I have had these before but this one caught me off guard and I am not sure what started it, I am going through early menopause, lots of stress, and change in other medications not sure if its the cobimation or one specific thing.I just know my levels are way off, I know the symptons, tired, weight gain in all the weird places and thirsty all the time. Also the headaches and mood swings. Its a pain, when the levels are right live is great, lots of energy, weight down and all is well, I usually have a crisis every 18 months or so. I would keep pushing the DR for a diagnosis for those who are not diagnosed, I know how frustrating it is to know you are not right and they (Dr) are telling you its in your head, you start to believe them for sure. I was so missed that at 18 they took my appendix out thinking that was the cause of my troubles :(
One of the long term affects of pred is tremors, they are treatable, another drug, they can be severe and hard to deal with.

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