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Re: My dad is dying of ALS

Re: My dad is dying of ALS

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Posted by Crystal on February 25, 2000 at 14:51:30:

In Reply to: My dad is dying of ALS posted by Em on November 11, 1999 at 06:29:41:

: A few months ago, my dad was sent to the hospital because of slurred speech and muscle spasms in one of his arms. The doctors said that he must have had a stroke. However, upon further research and testing..acupuncture, scans, and God knows what else, a neurologist discovered that he had herniated discs in his neck. He had surgery in July-they removed his c6 and c7 vertebrae and replaced them. After the surgery he began to go through speech therapy, but while we all thought he was getting better, he was progressivly getting worse.

: My dad called my sister and me last night(we live 1600 miles away from our parents) and he told us that he had gone back to the doctor and they diagnosed him with ALS-I was, and still am, quite hysterical. I don't really know anything about this disease, and I feel completely helpless. Right now my dad has very poor speech, has problems gripping things, has restricted air flow...he has all of it. Today I casually spoke with a Physician whose grandfather had ALS, and he said that from what I told him of my dad's symptoms, he doesn't have much longer to live.

: I am 19 years old, and I can't imagine my dad dying at the young age of 51. I know that God has a reason for everything, but I just feel as though I should be doing something about this disease. I can't say that I feel angry in any way, I just feel a sadness that I have never felt before, and I don't understand why there are diseases like this with no cure. The doctor gave my dad a prescription to help his symptoms, I think, but when he went to get it filled he could not, because it was six-hundred dollars for one month of pills. I really wish that someone could explain this to me. I'm sorry if this message turned out a little bit long, but I hope that someone out there is reading it and maybe has a suggestion or kind word. I know that God will take care of my dad no matter what, but I want to do something to help as well.

My dad just turned 50, he was diagnosed with ALS almost 8 yrs. ago and is still going strong! I think his stubborness and motivation are what have kept him going for as long as he has. He also has slurred speech, muscle tremors, he can't feed himself, dress himself, or shower himself. He also has round the clock care. The worst thing for me was the feeling of helplessness, and the realization the he was dying. The best advice I can offer to you is this: Be supportive, encourage him, and do everything possible to keep his spirits up. I think the best medicine is the support of family and friends.


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