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Re: Famillial ALS

Re: Famillial ALS

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Posted by Kristi Sizemore on August 29, 2000 at 10:55:32:

In Reply to: Famillial ALS posted by Barry Howe on August 28, 2000 at 14:41:30:

: My Father has had this terrible disease for two years, and he is copping well. All the family help out as my mother is on also on Dialysis.
: With the advent of the Internet I have managed to research as much as I want about ALS for my father, however I do have an underlying concern for my Brother, our young families, and myself. Their is no incidents of the disease in the family, however the Familial strain has to start somewhere. Does anyone know what percentage of ALS sufferers are new familial start-ups?
: Thanks in anticipation of a response.
Barry,
I have recently started reading and looking up ALS information because my brother has been diagnosed with it.The information I have read is that familial ALS is usually 10%.Mostly it is caused by things unknown.This is a horrible disease and has me and our family devestated.Luckily,he has a wonderful wife that is taking excellent care of him and 2 kids to keep him going.He is doing well.We are going to Johns-Hopkins in Baltimore in October to get a second(or is it 3rd?)opinion.Hope all is well with you.My address is below if you would like to email me and I'll send you some of the useful sights we have found.

Kristi


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