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Re: Will my family history become my future nightmare?

Re: Will my family history become my future nightmare?

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Posted by Rose C on September 01, 2000 at 13:56:19:

In Reply to: Will my family history become my future nightmare? posted by Heather on January 12, 2000 at 20:03:44:

: Thirteen years ago, I lost both my mother and aunt to this horrible disease two weeks apart. I am now 25 years old and working as a nurse, but have always avoided anything I heard about ALS. I guess you can say I wanted to erase it out of my head. Now that I sit here with my fifth ankle sprain, I wonder if ALS has anything to do with my so called "weak ankles?" I remember my mother falling all the time due to her ankles giving out on her. Any twitch or spasm also scares me. I have been making myself a nervous wreck as I do more and more research...seems like everything I read, I feel like I have experienced at one point or a time. Can anyone relate to this?
: I am scared beyond belief to have ALS ruled out at this point of time in my life...but when should I?
: I wish all of the caretakers of ALS patients the best. I was also a care taker from the age of 11 to 13. It was horrible to watch my very independent mother deteriorate with her speech, eating, walking, etc. She was bed bound with tube feeding, only able to blink and move her eyes. Whereas my aunt could still slowly and carefully ambulate, but remained on tube feedings at the time of her death.

I can certainly relate to a family history. I was 8 when my mom passed because of ALS. Before her it was her dad. I have also lost an aunt, uncle, my youngest brother & now my oldest brother has just been diagnosed. I think we can just live one day at a time. But I certainly feel as if there is a time bomb over my head. I try to abosrb all I can find out about this disease. That way if something doesn't seem right with myself I can know symptoms. Hang in there & try not to let this rule your life.



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