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Re: Just Diagnosed..they say 2-5 years, but from when???

Re: Just Diagnosed..they say 2-5 years, but from when???

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Posted by Shannon on November 05, 2000 at 20:35:19:

In Reply to: Just Diagnosed..they say 2-5 years, but from when??? posted by Brenda L on November 02, 2000 at 23:25:23:

: My mother just received a preliminary diagnosis from a neurologist that she had ALS. She has lost the strength in her hands. She can't do buttons or zippers, start a car, pull the tabs on a diaper to fasten them, etc. She decided to go see someone after an undisclosed period of denial only after learning from her sister's autopsy that her sister had ALS. While my aunt was alive the neurologist never diagnosed her with ALS. Who is right? Is an autopsy conclusive? Does this mean that my mother has the familial form of ALS? If so can my brother and I be tested conclusively or do we just have to wait and see? My mother has the beginning of slurred speech, frequent tremors in her hands, arms, and legs, and slight slowing in her walking. She won't say how long she's recognized that she had these symptoms. Does this sound like the beginning stages or more in the middle? I know all cases are different, but I guess I'd still like to hear that she has a good bit of time left. The more I read...the more I don't understand.

: I do not need an answer to the question "Why?" because I believe it is not for me to know and I know God will take care of this. I'm trying to find the best way to encourage my Mom to live everyday to the fullest, give her strength, and tell her not to give up without her thinking I am not understanding what she is facing. I can't seem to put all of my thoughts into a coherent form, but any experience you are willing to share would be appreciated. Thank you so much for just taking the time to read this.

My mother lived two years 2 1/2 years after she was diagnosed. She was experiencing the same symptoms that your mom is having now so they ran a bunch of tests and found out it was ALS. I think everyone progresses at a slightly different rate. All you can do is be there for her and cherish every moment you have together.


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