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Posted by Sara on January 11, 2000 at 17:39:45:

In Reply to: Re: Want More Info. posted by Carol on January 03, 2000 at 00:08:32:

:
: : As I look for new messages daily, I am surprized that there are not more to view on this, and another site i have visited, Alzheimers has taken over a big part of my life since my mother has come to live with me, and our local support group, as well as the postings on the net really help me to feel I am not alone in this. It may be the misery loves company theory, but also the hope that somthing that worked for someone else to ease the burden on myself, or somthing has just been discovered to help those afflicted with this disease, that I just have to keep searching.
: : Does any one know of an additional web site that has more postings, or info than this one? I will keep visiting them all since my life has changed so drasitcaly to care for my mom.

: Pam, I can sympathize with you. I am trying to take care of my 84 year old mother. You would think there would be more info out there for people like us. Is your mother incontinent yet? If so, how do you handle it? Mine is, and that has caused a tremendous problem. I spend a fortune weekly for her disposable diapers and I have been trying to find out where I can purchase the washable kind. This might sound trivial to some people but it has been a BIG (and expensive) problem for us. What are some of your mother's symptoms? When was she diagnosed with Alzheimers? My mother has been diagnosed with dementia but I sometimes wonder if the diagnosis was the correct one.I know this does not answer your question but like you, I just need someone to talk to.


I can empathize as my mom is in a home now with dementia, and our family dealt with all those
things before she had to be placed for her safety.
There is a lot of help out there, just start by looking into the local Respite Care and advocates
for the elderly in your community and/county. You can even be paid to be her primary care giver
by Social Security/SSI. My sister in law recieved pay to care for my mom until she needed in
more secure care.
Also, research the effects of low thyroid, as dementia is a definite symptom of it and I am
positive my own mother could have been helped at one time if diagnosed in time before she
had too many mini-strokes that shut down her brain too much. It is common in
elderly, and family's. I am hypothyroid, and had been losing my mental capacity before
diagnosis, and now am improving. It is complicated and one needs to research and get
books and see an endocrinologist. GP's just do not hav ethe knowlege, though many try
to deal with it. They will do TSH tests and think that syas it all...it does not.
Check out the Thyroid Board on Health Boards & about.com/thyroid, as well as search
the internet about thyroid imbalances and search the word dementia. There is no actual
clear deliniationbetween Alzheimers and dementia, though one needs a Alzheimer's
diagnosis for some programs. If I needed that diagnosis, I would press the docotrs and
ask for it. If he refused I would ask on what basis. There is no clear differientiation in all cases.
Or get another doctor's opinion til you got the one you need. What matters here is the
patient's needed care.

I agree that it is strange there is not more going on the board. Maybe it is because talking
about this reminds us we may end up like this ourselves. Denial! Or just being tired of the
whole subject...but clearly care-givers need the support. Also see the Caregiver's Message
Board on this site. My heart goes out to you all!

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