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Posted by ruth on October 07, 2000 at 10:09:39:

In Reply to: sleep for caregiver... posted by sally on September 29, 2000 at 11:11:08:

:Hi< My mother has had AD for the past six years and is 70 years old. My father and my elder sister are the main carers and I return home as often as possible to give my family respite. Somehting which I feel is essential. As a caregiver you must look after your own wellbeing as well as the sufferer, otherwise what use are you to them if you are unwell. Sleep being the main priority. Has the caregiver you talk about recieved help from the social services such as respite care, district nurses visits and such like? All these things he is entitled to and are a major source of comfort to my family just to be able to stop "listening" for a few hours in the day, using that time to relax, shop, or sleep. In my area there are respite weekends where the sufferer is placed in a home for two days so the caregiver can have a rest, or as we did in our situation, my sister wished to take a holiday and we felt it would be too confusing for her to go to a home out of her own enviroment, so through social services we organised for a live in carer for the two weeks she was away, which they paid for.
On the business of finances, do they own their own home? If so whose name is the house in? If it is in the sufferers name,if and when she may be placed in a council run home they have the right to take assets to pay for her stay there. This can be easily rectified by having the house tranferred into the caregivers or other relatives name to ensure that their assets remain in tact.

Of course I am writing from Britain and am unsure where you are and if its America I am aware your system of medical insurance is very different to our medical system over here. We also have a wonderful organisation called Age Concern here which offers wonderful advice, on how to make the most of the system in terms of recieving support and working your way around the legal and financial issues that surround a relative with AD.

Wherever you are my thoughts are with your friends/relatives, AD is one of the most cruel diseases not only to the suffeer but to their family as well.
Good Luck and get searching for info!
hello. how have some of you handled the problem of the caregiver being awakened lmost every nite by the altzheimers patient screaming and yelling? the patient is on arisept. the caregiver, 84 yrs. old, is beginning to show complete exhaustion and is being admitted to hospital for atrial fibrillation(heart) probs. is there medication for the patient so that the caregiver can possibly get rest? are there behavioral techniques he could utilize? he is very capable and mentally strong, and we hate to see him lose all his financial independence by placing her in a home. she is 90 and in excellent health otherwise. thank you for anyone with a possible solution. sally


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