Posted by Karin
on March 17, 2000 at 05:57:40:
In Reply to: Re: young pernicious anemia/please share posted by Angel on March 13, 2000 at 14:43:48:
Hi, I was 36 when i was diagnosed with PA. The diagnosis came about because my breast fed infant son nearly died due to the lack of B12 in my breastmilk. I wish someone had beena stute enough to recognise the symptoms of PA in the many blood tests i had prior to and during the pregnancy. I also have been diagnosed with an underactive thyroid. I know i have to really look after my self as my son really needs me to keep myself fit and healthy.
The b12 deficiency caused irrepairable brain damage to my son.
I know I was lucky not to have suffered any such damage myself....but if i could reverse it so that it is I and not my son who suffered mentally from this condition...i would gladly change places.
: : : Hi! I am a 31 year old female who has just been diagnosed with PA. I work in the medical field so you can imagine my surprise when I was told my serum level was very low (170). I just finished the Schilling test also and am waiting on the results. My health has slowly declined over the past year. I had just passed it off as stress. But... what sparked this whole diagnosis was a bad case of vasculitis (bleeding under the skin) around both ankles while I went on vacation. Has anyone had that? Not sure if its connected? I have all the symptoms of PA including neuropathy (numbness) in my right hand and slightly in my toes. I also have anxiety, depression, insomnia, head aches, & fatigue. I have had severe leg aches since I was a teenager (doctors always told me they were growing pains). I have not been able to start B-12 injections due to the battery of tests and switching to a specialist. I have never been so fatigued, in pain and apathetic in my LIFE! Physicians and medical professionals I know are stumped at the fact that a young person like me has P.A. I would really like hearing from other young people who have P.A. and your experiences. I can't wait to get started on my B-12 so I can get back to my happy go lucky self! Thanks for your help! I will try to help others if I can. I enjoy the board! Angel
: : I angel I was diagosised at 45, I am now 48. I had thyroid disease and vitiligo, for 20 years. My only indication of this was the tongue blisters etc, and sore mouth that no one could diagnose. My serum level was 70, and I had numbness and tingling in my legs. It took a while for me to feel better, but, my serum b-12 levels are now over 500. I take a product called nascobal a nasal gel. I still find depression and anxiety a problem that I can't seem to be rid of. I did have the stomach endoscopy to make sure things were ok there. I wish you the best.. its hard to have something like this at your age. Make sure you are screened for other autoimmune diseases.
: Thanks for your reply, and in fact I was screened for other problems. I returned to the specialist last week. He also diagnosed me with Fibromyalgia. I have since had my first 2 B-12 shots and I am noticing some relief in the neuropathy (numbness & tingling) in hands and feet. The doctor has put me on a very low dose of Elavil to help improve my insomnia and Fibromyalgia. I am trying to keep my head above water and hope things will improve soon. Thanks for your vote of confidence! I am hoping other young people with P.A. (pernicious anemia) will come forward with their stories! I do know about Nascobal and asked my physician about trying it. Surprisingly he was not familiar with it. Thanks, Angel