Posted by Fonda
on August 26, 2000 at 23:13:34:
In Reply to: Re: thalasemia minor (inherited anemia) posted by AF on August 17, 2000 at 15:59:14:
: : : : I question whether you have thal minor, also known as Mediteranean Disease - which means that
: : : : people who are 100% Italian, Greek etc.(countries located near the Mediteranean) are the only ones
: : : : to get Thal minor or major.
: : : re this message. Im from a family of four and three of use have inherited this from our father. He is part maori ( we are from NEW ZEALAND ) , my mother is part hungarian ?? should have come from her side but didn't. I've been told not to donate blood and to check my husband before having children.
: : Hello Everyone,
: : I am French but currently living in China. I had recently a blood examination in the hospital and they diagnostic me as having Mediteranean Disease.
: : Since they were not able to give me more explanation of the disease I would like to get more information. Does any of you know a website or person to contact in order to get more technical information on it ?
: : Thanks for your reply.
: : Also if any of you know how the diagnostic is done. I saw my blood test result showing RSA 56% but I have absolutly no idea on the meaning. If someone can help me ?
: : Best Regards
: : Laurent
: I read in a message above that you have to be 100% Greek or Italian or what not. No, actually you do not. I inherited this disease from my biological side of the family who are in no way 100% anything. Do not be misinformed. Also, what helps me bring what ever levels they are checking up is Prescription Folic Acid. I have been on it since I was a young teenager. I had had blood work done for other reasons and when the doctor got the results back he saw something unfamiliar to him and weird. So, he ordered test he had never had to order before and did them on me. He was testing me for thalasemia. Well, I have it. I haven't taken my folic acid in a long time, but I will say this, it helps my energy levels tremendously and I do not bruise as easy. I have five brothers and three sisters. A few years ago my sister was diagnosed with thalasemia. Some of us went in for testing and I didn't have it but my youngest brother did. My mother tested negative but my father refused to be tested. We are not 100% anything either.