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Posted by Roberta on October 01, 2000 at 09:34:46:

In Reply to: Re: PA and Pregnancy posted by Lisa on September 30, 2000 at 00:20:45:

Lisa,

What kind of tests determine why the B-12 went down...is it that Schilling test or something that I have heard about on the message board. My Doctor just said we don't know why it went down and we don't know if it is something I have always had because I never had a blood test, testing the B-12 before, so before it was at 120 and I started getting shots I don't know what is was at and neither does he. I asked him about that Schilling test or whatever whenever I first was on the message board telling him that a lot of people seem to get that and he said there was no need because we know I have it and since it is going up because of the shots (Thank Goodness) then I would have to always get the shots so he said it wouldn't matter why it went down (basically). I heard a rumor that my Doctor is moving. Maybe that is a good thing and I will be forced to get a new Doctor who might know a little more about Pernicious Anemia. See, I have stuck with him because I have always gone to him and he knows all my history. He is a good Doctor very personable and smart but it just took him so long to figure out the Pernicious Anemia and then every time I went to see him with the symptoms...well I felt like I had some weird thing that noone else had. Then I found the message board and realized other people had this.
Well, my husband just asked me if I was writing a book to you, because this is so long. hahaha
Let me know what kind of tests are involved.
Thanks,
Roberta
P.S. Sorry about the run ons...I just got up and checked the message board, so it is kind of early.

: Hi Roberta,

: The first step I think is to talk to your OB/GYN about your condition. With B-12 shots during your pregnancy, you should be able to have a healthy pregnancy. Your levels should be high before you ever get pregnant, and then monitored. I am concerned that your doctor didn't try to ascertain the origin of your B-12 deficiency. People don't just become B-12 deficient, unless they are vegans for several years. There is usually something bigger attached to it when you become deficient as an adult (in other words, you weren't born with it).
:
: As for me, after a lot more testing it turns out that I have pernicious anemia as autoimmune disease, my body is attacking the parietal cells in my stomach (which make intrinsic factor which is needed to bind with B-12 for absorption) That's why I cannot absorb B-12. The bigger issue is that this puts me at a higher risk of atrophic gastritis and/or stomach cancer down the line. I have to get an endoscopy next month to look at the inside of my stomach. I'm on a macrobiotic healing diet and seeing my acupuncturist who is trained in Traditional Chinese Medicine. I am determined to turn this around as I don't want to live my life with body attacking itself.

: Anyway, sorry this was so long. I do encourage you to do more research and ask why they aren't trying to find a cause. It would be good to know for your pending pregnancy.

: Keep in touch!

: Lisa



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