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Posted by Sylvia on October 12, 2000 at 03:08:20:

In Reply to: Re: thalasemia minor (inherited anemia) posted by laurent on August 01, 2000 at 00:09:37:

: : : I question whether you have thal minor, also known as Mediteranean Disease - which means that
: : : people who are 100% Italian, Greek etc.(countries located near the Mediteranean) are the only ones
: : : to get Thal minor or major.

: : re this message. Im from a family of four and three of use have inherited this from our father. He is part maori ( we are from NEW ZEALAND ) , my mother is part hungarian ?? should have come from her side but didn't. I've been told not to donate blood and to check my husband before having children.

: Hello Everyone,

: I am French but currently living in China. I had recently a blood examination in the hospital and they diagnostic me as having Mediteranean Disease.
: Since they were not able to give me more explanation of the disease I would like to get more information. Does any of you know a website or person to contact in order to get more technical information on it ?
: Thanks for your reply.

: Also if any of you know how the diagnostic is done. I saw my blood test result showing RSA 56% but I have absolutly no idea on the meaning. If someone can help me ?

: Best Regards
: Laurent

Hi,
I am Sylvia. I am from Indonesia, and now staying in Singapore. I was diagnosed with a Beta Thalassemia when I was pregnant with my first baby. My husband had to be tested also to make sure that he doesn't have the trait, to make sure that it was save for us to have the baby. Luckily the teston my husband came out negative. My baby is 18 months old now.., and I am now going through my second pregnancy. All my life I didn't know that i have the trait, it is just that I am always tired and a little bit anemic. Doctors used to prescibe me with iron pills for my anemia.
I know that it is not true that only people from mediteranean can get this thal minor. When I was diagnosed with the disease I search the web to find answer to all my questions about thalassemia, and I found this site quite helpful.. it's http://www.thalassemia.com/
Sylvia

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