Posted by JAMIE
on November 18, 2000 at 13:29:35:
In Reply to: Re: thalasemia minor (inherited anemia) posted by Edmond on December 07, 1999 at 01:33:18:
: : I am currently 22, and I was diagnosed with thal minor, when I was six years old.
: : In the early 80's I was told to take iron supplements, but now I know they probably
: : will not help me. It has been very fustrating as I have never been able to perform as
: : well as my peers with aerobic activities such as endurance running.
: : I am also not sure about what to do about this illness, but I have noticed that when
: : I jog twice or more a week (15 minutes per session.), my energy level is still higher
: : than "normal" people who don't exercise.
: : I have been told that taking vitamin C and E will help poduce more red blood cells
: : which might help, but so far I have found no documentation on this. I have also been
: : very fustrated by the lack of information of thal minor on the Web.
: : Finally, I would like to say that we got it a lot better than those with thal major.
: : The last thing I want, is to have a kid with thal major, and if I ever do have kids
: : I plan to make sure that my partner is not a carrier of this disease.
: :Hi! i am edmond. My case is similarly with arthur's case. I am also 22, and discovered that i have
: : Thal minor at also 6. But my case is during my childhood i was told not to take iron pils
: : but take those food with rich iron content. However, now i can consider myself that 'OK'
: : although i looked pail and yellowish. I agreed with Arthur that our stamina and our energy
: : is just as good as normal person, or i could say we are better than those healthy people
: : that do not have sports. But my doubt now is with my next generations. I really do not want
: : to have children that is/are Thal minor or badly Thal major. I hope i would not have any
: : relationship with THALASEMIA after this. I realy hate and frustrated with the uncurable.
: : And at this message board i realy do hope so someday or somehow that someone can
: : find a way to get rid of it. Thank you very much.
: : Hi my name is Jamie and I was diagnosed w/ Thalasemia when I was around 6-7. Having Thalasemia
: : is not fun nor is it understanding to people who does not know about the disease, which is alot, because
: : they automatically thing you're exagerating the symptoms or you're just faking it. I know that I get sick real
: : easy and I am tired all the time. I have to fight to motivate myself which is very frustrating because there
: : is so much that I want to do but I end up not doing it because my fatique overpowers my motivation.
: : I feel that we need to have much more information on thal minor and thal major so that we can help
: : ourselves in living more normal lives and make us feel better about ourselves rather than getting angry
: : with ourselves........THANK ALL OF YOU!!!!...PLEASE E-MAIL ME IF YOU ARE IN MY SITUATION ALSO
: : THERE IS NOT ALOT OF PEOPLE YOU CAN TALK TO ABOUT THIS....