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Posted by Ann on November 05, 1999 at 19:10:13:

In Reply to: Re: Request feedback on Enbrel posted by nconover on October 28, 1999 at 21:57:51:


: : :I also am interested in Enbrel and if there are any others who are using it. Especially in the cases of JRA> I have a 15yr old daughter who has not responded to anything. Not NSAIDS, not Methyltrexate, not steroid injections. Enbrel is the next step. I'm concerned that there is no long-term research data available. Thanks.
: : : I have just started Enbrel injections. Any feedback from current users would be appreciated.

: I'm sorry, I can't give you any help on Enbrel for JRA. I am just over 50. Although I'm concerned about the absence of testing, I'm over the hill anyway so I'm going to give it a try. I'm in my fouth week of injections now...no wonder drug so far. I'm having some skin rash bu that is the only symptom.
: Good luck. CB

I am a 58-year-old RA patient, and I've been taking Enbrel since April. I have developed a skin rash that itches like crazy. It is more like these flat, dry "suede-like" patches of skin, mostly on my trunk chest and back. I also have a recurrence of ecxema on my lower legs. I'm just wondering if either of these descriptions are similar to the rash you say you have developed. Otherwise, I'm feeling better than I have felt in a long, long time. I am wondering, though, if I should report the skin rashes to my rheumatologist before my appointment in December. Thank you for any information you'd like to share.


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