Posted by Sue
on March 25, 2000 at 23:34:34:
In Reply to: Re: scared and frustrated posted by Kasey on March 23, 2000 at 21:08:50:
: : : Hello,
: : : A few months ago my knuckles symmetrically began to turn red and swell. My doctor did blood work
: : : (no lupus) and referred me to a rheumatologist. The rheumatologist took more blood (I am negative on
: : : rheumatoid factor), put me on anti-inflammatorys, and gave me braces to wear at night.
: : : Since then the swelling has decreased, but my hands and wrists ache. Some days are worse than others.
: : : My grip on items gets shakey, and sometimes the pain is very pronounced. And often by the end of the
: : : day, all my knuckles look bruised, like I wacked them against a wall.
: : : I recently had an EMG which showed no CTS. My rheumatologist says it could be early
: : : RA (sorry for all the anacronyms :) But she seems to be taking a 'wait and see' attitude towards diagnosis.
: : : Dont get me wrong, I dont particularly want to be diagnosed with RA (no offense to anyone).....
: : : but this 'wait and see' thing is making me terribly upset. I try to convince myself that its "all in my head",
: : : but then I will have a bad day with my hands, and I get angry with my Dr.'s for not telling me anything other
: : : than - take these pills and come back in 30 days. I just really want to know what the heck is going on with
: : : my body.
: : : Is this par for course? Ive read that RA is sometimes difficult to diagnose, or to rule out. Should I go to
: : : another Rheumatologist? If this is RA, is there anything I can do now? Are these symptoms consistant with
: : : anyone out theres symtoms? Does this sound like anything else to anyone?
: : : Im so freaked out and frustrated, Im not sure what to do. I would appreciate any advice, or comments.
: : Kasey I was just diagnosed with RA after a year of different diagnoses. My rheumatoid factor was also negative but my doctor and others have said that 25% of the people with RA have a negative test(called sero-ngative RA).I do have carpal tunnel as well as plantar fasciatis,these seem to be affected by the RA. My internist is treating me like i have RA and after taking a month off from all the testing will send me to a Rheumatologist. I am taking NSAIDS as well as muscle relaxers and Plequanil. So we will see. If you question your Dr go for a second opinion it sure wont hurt. Sue
: Sue, thank you for responding, today my rhuematologist prescribed Plequanil... which I still dont know if Im comfortable with since there has been no diagnosis... but anyway, how has your experience been? Has it helped? Are you having any side effects?
Well Kasey I haven't been on it long only a couple of weeks.I haven't noticed anything so far. No real side effects so far. I am just tired and I don't think I ache as much but not real sure because my schedule has been real busy, We will see!!!