Posted by Nancy
on October 12, 2000 at 12:30:17:
In Reply to: Let's help Nancy and quit attacking Grandma Peg who has sound advise posted by ball on October 12, 2000 at 01:32:13:
: Dear Nancy,
: I'm a Mom of a child who regressed like Yvonne's daughter. My daughter spoke and was developing normally until about 26 months. She was, however, sound sensitive before this time and also was wary of people who were tense. She started regressing after her second birthday but it was so slight that we didn't pay too much attention. She slipped away slowly and it took about a year for her to lose all language. She really did hit rock bottom with no language and no eye contact. Your child has some aspects of autism but is still within the "typical realm" so do anything you can to keep her there. Test if there is a problem with diet (caesin and gluten) even if there are no outward signs; my daughter seemed to have a normal digestive system but tested positive for IGg antibodies. The removal of dairy and gluten lifted layers of spaciness from her. We didn't do diet until a full year + after her hitting bottom and that still haunts me that I didn't at least test for food intolerences. Address her sensory problems with a qualified OT - is she over aroused or under aroused?
: It may very well be that her immune system is impaired (Lyme?) and has set off a chain reaction that affects her neurological functions. Being labeled autistic doesn't define the problems that exist at this time or change the child; keep in mind that children lose labels with luck and sensitive proactive parents. Time is of the essence. I'm sorry that your child has been affected. I wish you strength in your battle and will support you as I can.
Thanks. Thanks for reminding some of what this board is really about....support! I truly appreciate everyone who responds to my messages. It gives me a lot of comfort to know there is so much that we can do for our children. When I first got the diagnosis, I felt like all the dreams I had for my daughter were gone. If only I had known then how much intervention, diet, etc can help, I may not have taken it so hard. Don't beat yourself up over not getting your daughter tested sooner. There is so much information out there to digest that it's impossible to know everything once you start the "journey" of having an autistic child. Most people, like me, who are new at all this would have had no idea that food intolerances could cause such a terrible condition. How is your daughter doing on the diet? Has she responded well to intervention? Best wishes to you and your daughter. Hopefully she is doing well.