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Posted by sc's mom on October 18, 2000 at 00:13:18:

In Reply to: sc's mom--help posted by lynda on October 17, 2000 at 22:36:34:

Lynda, it's good to know others are going through this hell, but it's sad at the same time. I get so burned out on crap on the floor, in the toybox, on the toilet lid, close, but no prize, my God, what next. How can I sanitize my home, I would love for people to be able to come and go, but I feel like I am living in the city dump. My whole life is upside down. My husband is very supportive, but all men are just big children so there you go, another one to care for. My mom kept both boys tonight for me (once in a lifetime deal, I'm still wondering what she'll ask me to do to repay her the favor) and she said they were angels!!! I'm not shocked. They terrorize our cats, they crap on the floor, they tear into things, peel the paint off the walls, and then....they go off and are perfect? She thinks I'm the idiot. They just basically made me to be the liar and I'm elated that they were good, don't get me wrong,(she'll be more inclined to keep them another time), but she tells me I'm the one with the problem!!!!!!!Hello!!!!!!!!She's right, but we all have problems when mom's off the deep end right? Well, thanks for listening to me guys, I still need encouragement to go on and it does help to hear suggestions on sanitizing and deodorizing the place.


: Dear sc's mom,

: My 5 yo autistic son does the SAME thing with the VCR.
: He will rewind something over and over and over again.
: Needless to say, his TV time is very limited.
: I live in PA and do not know what GA has as far as programs go, but check to see if there is a program to get your son an aide or therapeutic staff support and supports for the family, like a mobile therapist. In PA this is called wrap around and my son has a therapist with him all day plus his other special ed. people. Support groups help too. For ex. in PA I belong to Parent to Parent of PA and they have just been wonderful. Sometimes though with all the support you can get, you feel like checking in. I know, many times things get tough. I have a 2 yo, a 3yo, a 6 yo and a 5 yo autistic son plus a baby on the way. (My autistic son and 2yo are not potty trained and I have had my share of accidents and messes on the floor).There are people in and out of my house from 8:30AM to almost 4:00PM. I would suggest you have your 2 yo tested as soon as possible. Also, keep in mind autism affects the the whole family. I have had some tough times with my typical children(all girls) and expect to in the future. My marriage is a complete disaster. My parents never want to take their grandson because they are affraid. You begin to feel so isolated and alone with autism that at times I do feel as if I lose touch with everything else and basically, I am dealing with it on my own. So, take some time out for yourself too. I thought I could keep going without any breaks and I discovered you can not. So, I try to make some time for myself once a week. I go to Wed. service or go shopping. And if some days your house is a total wreck (mine gets that way sometimes too) so what. It will be there tomarrow when your kids need you today.
: It is real hard though to reach that balance. I struggle all the time. Especially when people are in and out of my house all day. Well, I hope I have helped some. Remember you are not alone. What you descibed sounds like some days here at our house.
: Hang in there and try take one day at a time.
: Best wishes,
: Lynda


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