Posted by ashley
on November 18, 2000 at 23:02:11:
In Reply to: Secretin Effects on my son - first hand knowledge posted by Dad of 3 year old autistic boy on November 05, 2000 at 19:25:03:
: My son has had three injections of secretin ranging in doseage from 2 to 2.5 units per kilo of body weight. After the first injection, he had an immediate improvement in eye contact, following verbal instructions, patience, interaction with me (I've always been a distant second to mom as far as interaction with my son) so much so that he learned to swim within three days of the injection!!! Unfortunately, he developed an otitis/sinusitis about one week after the first injection and all gains were lost within 48 hours (though he still swims). The second and third injections were given at three to five weeks intervals - and there was no improvement at all. I feel crushed at this point, we still have a fourth vial in the doctor's freezer (which has to be stored at 0 degrees farenheit (minus 20 celcius), and I will proceed with a 3 unit per kilo dose - but deep in my heart, I doubt it will work. It has been four months since the last injection. I am puzzled and bewildered as to the great response on the first injection and total failure of the next two. It was nice to have a son who wanted to cuddle with me - even if only for a week. If anyone has any first-hand experience with repeated secretin injections at the mentioned doses, I would like some guidance and advice on whether I stop with number 4 or continue. It is not inexpensive and very difficult to obtain (which I have done from reputable sources). Thanks for your input in advance.
: The little guy's dad.
REPLY:My heart goes out to you, and i don't know how much help this will be other than to say that from what i've read about secretin therapy, sometimes there is no change until the second, third or fourth doses. However, your situation seems to be the opposite which in itself may mean something. Do you think the sinus problems may have anything to do WITH the pool? I'm thinking that whenever my son would submerge his ears, he would pull at them like they hurt, and i'd notice he'd regress slightly after each swim. i also noticed my son would try to drink the pool water, and i'm sure (with him anyway) that ingesting all the chemicals in the pool caused a type of regression also. Good luck and my prayers are with you.