Posted by Liz R
on September 21, 2000 at 10:41:38:
In Reply to: Re: getting back to the reality of this situation posted by Moderator on September 20, 2000 at 17:36:37:
: : I believe that Kanners is still quite rare, and probably hasn't changed in rate of occurance.
: Kanner = Refrigerator mothers?
: You believe that?
: "It was this same Kanner, who, in 1960, was quoted by Time magazine as saying that children with autism were the offspring of 'parents, cold and rational, who just happened to defrost long enough to produce a child' (Steffenburg & Gillberg, 1989). It was also Kanner who said that the children were not neurologically impaired (in the face of evidence to the contrary in his own original writings). He asserted that they were of potentially superior intelligence (without citing any evidence for this). He thought the families were upper class.
: "All of these assumptions have been questioned or disproven, often after decades of unproductive word-game debates."
: from a now pretty old article, itself out of date, the same as Kanner: http://www.asperger.org/articles/asp006.asp
: : But autism in diagnosis and treatment remains firmly in the hands of psychologists at this point in time, and to trust a medical doctor with limited experience in either dx or treatment is extremely foolish.
: My child was diagnosed by a physician.
: : Your HMO won't cover any of the therapies for autism, neither will Medeciad.
: I've never had coverage denied for treatment.
Thank you Moderator
New genetic studies support that there is a predisposition to autism, but because autism only occurs in both identical twins 60-80% of the time in cases studied, there is thought to be a trigger for the disease. When I chatted with Dr. Smalley on DNA.com, I asked if the trigger can occur in both the prenatal and postnatal environment.
Dr. Smalley says that evidence suggests that the trigger (although she didn't say that she knows what the trigger is) can occur in both environments - a virus, etc. Since the only known cause of autism is prenatal exposure to rubella, I would say that a lot of insurance companies have got off the hook with all of these psychological theories and much time has been wasted. In fact, my insurance company doesn't even classify autism as a psychological disorder, but a developmental disability.
I don't think this disease is psychosis. Why does it coincide with immune dysfunction and gastrointestinal problems? Why does this disease become more prevalent with each passing decade? How much longer is it going to take for the CDC and NIH to get involved in some real research?
Dad - I agree that we do need to continue with the behavior therapies such as ABA that we know work, but I think that a lot of parents are satisfied to just treat their children and not ask why this has happened to them.