Posted by Moderator on September 21, 2000 at 19:33:40:

In Reply to: starting the journey and scared posted by Alison on September 21, 2000 at 15:51:56:

It is very wise at this point to also line up any help you can get from family, volunteers, friends, social services, health professionals, whomever. They can help you with the large task of discovering sources of treatments and implementing the treatments.

One thing that only a few parents in your situation have the foresight to take care of early is to plan financially. The consequences of not having a plan in place now to help your child when you are older and after you've gone can be great. You may want to check www.agoodlife.org