Posted by Dan
on October 01, 2000 at 14:04:43:
In Reply to: Re: My 4 year old autistic son is starving himself. posted by hisdad on September 29, 2000 at 22:02:40:
: Dan- I'd be interested in his BMs and potty training. If there are any abnormalities here - such as if he is not potty trained yet, diahrea, green or fowl smelling stools, anything - he has a problem - OBVIOUSLY - with his gastrointestinal tract. Many people have cleared it up with GFCF, although you have done that long enough to rule that out. Are you sure he is GFCF? We thought John was for a while and discovered hidden milk products in potato chips, etc, and we became much more strict at reading labels. We are a good example of how pretty much GFCF is not as good as GFCF!!
: I agree with the person who says lots of good food can be had on GFCF. Add to that list, pizza, cheese, ice cream, cream cheese, potato cips, french fries, blah, blah blah, and if you try hard enough, you can get there. My son has gained over half his initial body weight on GFCF!! He was starving himself too!!
: Don't count too much on the experts, for the most part they have their noses stuck in their text books, and you know what? The answer isn't in there - yet. It will take the ABA, GFCF, secretin radicals to feed the text books so the experts can know what's going on. In my opinion anyway. Good luck to you.
I think you are on the right track, however, I do not know what I can specifically do about it. We know that somehow gluten has been sneaking in to his diet from the follow up lab tests, but we cook everything from scratch using fresh produce. He does eat Barbara's potato chips (potato, olive oil) and cashews. We have not tested for a while. He was almost potty trained at one time. Now, he goes in the bathroom, but only if we take him there. Today he wouldn't drink his morning almond milk. He got very distressed when we approached toward him. Later, when we took him for a walk, he drank lots of it and wanted more. This only works some of the time. I'm all for more testing but like the MRI I am doubtfull that we will find anything. He seems in discomfort but it is hard to know for sure. Last night he had an episode of histerical laughter. He would not calm down. He would not stop laughing. If anyone got near him, he would pull their hair and kick.