Posted by Jaqui (UK)
on October 05, 2000 at 08:43:41:
In Reply to: Vitamin A and Bethanecol posted by Cheryl on October 04, 2000 at 21:53:40:
I was in exactly the same position a few months ago and eventually added in the bethanecol on 2nd September 2000. Within 3 days we got more spontaneous appropriate speech then we have ever seen; he was babbling a lot before but apart from occasional outbursts (when stressed) we had no speech (Stephen is 71/2 and was diagnosed profoundly autistic at 31/2). Stephen has continued to make progress with his verbalisation but this is most marked for the first couple of hours after the bethanecol has been administered and fades back in between doses. I had the opportunity to discuss the with Mary megson last weekend (at the AiA conference) and she suggested that when she was seeing kids like this they tended to have a problem with mercury so I am now doing further research to start chelation. She also said that she did not see it as a long-term treatment and was titrating the kids doses back down with a view to discontinuing the bethanecol in the longer term once the pathways were reopened.
I posted requests for info on a lot of the boards when we introduced the bethanecol and I have saved my replies. If you send me your email address off board I will forward you what I've got if you think it might help.