Hi . . . I also have a posting on this site . . . and was disappointed that no one responded yet. However, I have another dr. appt. Tuesday to see what gives. Anyways, I started looking at other postings that weren't responded to, and noticed that I'd never heard of what you have. So I did a search on the net and found a bunch of websites . . . (even one that's looking for participants in a study). Here's the most informative site and it seems to include most of the symptoms you described: http://www.lungusa.org/diseases/lungsarcoido.html#about
Here's the one doing the study:
If you do a search on Yahoo, type "sarcoidosis" in your browser "search" window and you'll find other sites.
Good luck to you.