Here are some websites I have found to have good info on pituitary disorders.
(For those of you who are not Zoe ... feel free to pitch in with your own suggestions since i think we are both pretty much out of ideas right now. We have both posted all over these boards so you might have seen us before. We both have a bunch of severe but nonspecific symptoms that have totally taken over our lives, including GI problems, skin problems, swelling, unexplainable weight changes, dizziness/fainting, weakness, changes in appearance (face shape, skin color), etc.) I have become a research junkie and my current theory is that I have a pituitary disorder, so here are sites I have found helpful.
Massachsetts General Hospital Neuroendocrine Unit
(this is one of my favorite websites for pit. tumor info...tons of stuff here) www.pituitary.mgh.harvard.edu
Oregon Health & Science University Pituitary Unit www.ohsupituitary.com
NIH Endocrine Center http://www.niddk.nih.gov/health/endo/endo.htm
Research Foundations www.pituitary.org www.pituitary.org.uk
Also the National Library of Medicine database (PubMed) is awesome for researching ANYTHING. I spend a lot of time looking stuff up on PubMed. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
Zoe... doy you have any other suggestion for research websites? I have spent so much time trying to figure this out, there are times I think I should just give up and let my doctors do all the work... that's their JOB, right? (although they haven't been doing such a great job of it lately)