Re: Newly diagnoised aspergers
My 9 year old son has AS and lives by charts! He has a chart for everything - he needs the stability of routine and needs to know EXACTLY what he is going to be doing at what time. We do however have slots during the day that are blank for us both to fill in with what we 'feel' like doing.
Storyboards are an excellent tool for a child with AS. They are like social stories which help teach them the social skills that they struggle to understand/develop and are on paper, using pictures - almost like a mini comic book story of their life.
I live in the UK so the tests that they do here may differ from overseas -
My son met with various medical professionals over several weeks:
Occupational Therapist - ensuring motor movement etc
Educational Psychologist - looking at learning ability/disabilities/iq/school level
Social Worker - whether you need help from the home
Speech Therapist - if there is a speech disability
Opthalmologist - eyes - many autistic children have something called 'Irlens disease which is corrected with coloured tinted lenses
Audiologist - hearing difficulties
Consultant specialising in Autism - assesses your child in the hospital whilst your child plays. This visit was particularly entertaining for all concerned as my son is fascinated with foreign accents and as his consultant is from India my son was answering all her questions in an Indian accent which the consultant said was amazingly accurate!
These people did various 'tests' on my son which were oriented towards AS as the consultant who saw him initially was like your dr - 99.9% sure that he had AS.
I had to fill in around 30 different 'forms' asking questions like
Has your child ever licked an inanimate object?
Does your child have obsessions about certain things?
Does your child find it difficult to interact?
Does your child play with or alongside other children?
Does your child have problems looking you in the eye when talking to you?
Does your child have problems/obsessions with food?
The list is endless! However they are obviously asking questions that are quite apparently autism based and as the parent they ask that you answer them as honestly as possible.
There have been that many tests that I am sure I have forgotten someone, however I believe the more people you see the better the opportunity for a swift firm diagnosis which will then entitle you to lots of help and support from a variety of sources.
Good luck and remember you are most certainly NOT on your own!