That's terrible news, I'm sorry. But also remember doctors don't always know what's going to happen. And they like to give you the worst possible prognosis because they don't want to get your hopes up and they don't want to promise anything. You aren't going to ever have perfect skin again. I think you probably knew that already. But you can get a lot better, and you will.
Plus, think about all the advancements they are making with laser surgery and light therapy these days. Your cure is out there somewhere and they just have to discover it! Think of it that way.
Try not to obsess over it, you have your whole life ahead of you and you will have amazing experiences no matter what your skin looks like.