Re: my son who is 7
Wow, I am sorry that all of this is happening to you and your son. It is nice to find someone who knows what I am talking about!!!! Thank you for writing back. He is very smart, but he has missed most of this school year so he is behind. He has had two revisions since August and the chiari and tethered chord surgeries too. The chiari was the worst his doctor had ever seen. His nuerosurgeon and his pulmonologist both say that they are not related, but when he was diagnosed (for the CF and hydrocephalus), at 10 months, there was one other boy who was the same age and diagnosed for both hydrocephalus and CF, the nuerosurgeon says she has never seen that happen before or after!! Is your son having surgery for the chiari??
Last edited by cbeealmost30; 05-26-2006 at 06:34 PM.