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Old 07-04-2006, 08:03 PM   #1
JLYN JLYN is offline
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Join Date: Jul 2006
Location: Northern California
Posts: 6
JLYN HB User
Red face So what do you all think?

Hi..my name is JLyn & I have not been diagnosed with fibromyalgia, but in my quest to find out what is going on with me, I have stumbled upon the word and disease of 'fibro'...as you all refer to it.

My story begins with the birth of my darling daughter Jade 4 years ago. Immediately after having her, and up until a year ago I experienced terrible leg/knee pain. I couldn't kneel, crap somedays I felt like I could barely walk. I really didn't think much of it, chalked it up to some rough birthing....

Fast forward to almost a year ago, October. During daylight savings time. I noticed 'a lot' of eye floaters. 1 really big that kinda didn't 'float' but just hung around, impeding my vision. Bothersome. Also, I started noticing vision trouble @ night. Couldn't really see the road very well anymore @ night....made an appointment with my optometrist and had my glasses changed. That didn't help though. Went back, and the optometrist said that my pupils are abnormally large, so he tinted my glasses, and put a glare control on them, all with the thinking that this would help....even though I told him my problem was not due to light refraction.....oh well....
Nothing changed. I went back yet again...he then sent me to a retinologist. 1 look at me from the retinologist and he said "why are you here? your retinas are fine", and sent me to my primary doc.

Well you can only imagine...yep...that began what I call the 'bounce'....
bouncing from 1 doc to another....back and forth. new doc here, old doc there..here a doc, there a doc, everywhere a doc, doc....(sorry couldn't help myself )

Anyway, I have seen an ENT, 2 neuro's, 2 primary's, 1 endo, and still I have not 1 dx of ANYTHING! With the exception of my Hashimoto's that I have had since 11 years old and managed with meds.

Today I suffer from chronic low back pain...pain shooting across my lower back and then nerve pain shooting down my leg, into my calf. Sometimes up my back and into my neck. Bouts with Iritis (arthritis of the eye?), tremors of the right hand every once in awhile, continued eye floaters with the large spot in the right eye impeding vision, restless legs at night, queasy stomach some days...but not every day...sometimes with vomitting, dizziness/balance and 'lightheadedness', increased sensitivity to bright light, noise, and this one may sound weird...believe me I am weirded out by it....driving..when I am in a car the other car's appear to be going extremely recklessly fast...almost feels like anxiety in my chest...???? **** I really hope I am not going crazy too!...feet cramps, mucsle spasms, and finally..lastly...incredible fatigue!

What a list right? I am almost embarassed by it. It is extremely difficult for me to verbalize the list to doctors. I somehow feel like I am copping out, or feel 'less' somehow....I feel thier eyes...looking at me and wondering if they think I am just crazy.....

Well....I have had a CT scan done with the findings of 'frontal lobe atrophy', an MRI of the brain w/o contrast with no findings of lesions (they were looking for MS)., blood work to rule out lupus, rhematoid arth., diabetes, and even sphylillis (sp?)....which would have been crazy because I am married .....I even had my levels of TSH checked to make sure my Hashi's wasn't just acting up.

Other small stuff....could be related, could not be...
I was rear-ended in september of last year. Nothing in any testing suggests damage due to the accident. It was a low-speed rear-end...I had whiplash but only a slight case of it. Out of work for 3 days to rest....

I also am sensitive to heat. In it I become a wreck! Tired so tired....almost like...'let me ly down and die' tired....and my right hand begins to tremor...I also get queasy....

I go tomorrow to see my neuro again. The same neuro who told me I did not have MS. She wants to make sure she didn't miss anything....ya think? Then the following day I go for an ENG test. I guess I just don't know what to think...

Some days I feel so damn good. I wonder....AM I going crazy? Then WHAM...it's back and in full force...I actually have a name for it...it the symptoms...I call 'it' the MoNSTER! Because it is....

So, can all this be 'fibro'?
Does it sound possible? I am really thinking of discussing this with my doc tomorrow.....

I need answers..you see I have a full time family and a full full time job that is upper management, is very demanding, and very fast paced. I am losing my 'edge' if you will....I am not managing my life or my career very well anymore...barely...whatever this is is robbing me. Stealing from me...and I need to get a handle on it...

If it is 'fibro'...is it possible to get a handle on it?
Well..this is turning into the next great novel.... or not...but a novel anyways....I will quit now..
Thank you for reading and if you got this far....any advise and what you think is welcomed.

Thanks~
JLyn