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Old 08-31-2006, 07:04 AM   #1
Tess2202 Tess2202 is offline
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Join Date: Feb 2005
Location: FL & VA
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Red face Birth Defects in Gulf War Children

My grandaughter was born with micro lissen calphy, also known as ' smooth brain' syndrome. Her brain stopped developing at 3 months during gestation.

She is 9 months now. The problem was not apparent until her seizures began at 6 months as her body outgrew her brain's ability to handle body functions.

She continues to deteriorate, does not have adequate swallow reflex and now is fed through a stomach tube. Her seizures are frequent and she is heavily medicated. Her life span projection is approximately 3 years.

This is supposed to be 'very' rare but I have seen posting from other Gulf War parents on the same illness.

I ask other parents and family to document the birth defects they are living with because the Veteran's Authority and government data is lacking.