Re: Trying real hard to cope with SLE...
The question in one of the first posts was "Does Rheumie agree it is unsafe?" The answer is YES. I seeked out 2 opinions from orthopedic surgeons on my own without telling her...both said no KR for a very long time. I feel all the Dr's (ortho's & Rheumie) just dragged me along for the ride because they have a very hard time telling a patient...your life might as well be over.
My appt yesterday with one of them FINALLY came out & told me so. Saying my case was very rare, being someone who desperately needs a TKR & also having Lupus. Telling me how hard it was telling me know & how unfortunate it is that we as patients are bounced back & forth between Dr's because no one wants to tell you...the road ends. He told me they have a very hard time talking to a patient about their mortality. Why I ask myself? what I come up with is they want nothing to do with a patient "GIVING UP on life".....
I would like to know what other Dr's have to say in other area's. So if you all get a chance...ask your Dr's...for a friend.
Have a good day!
*~* "Cherish every moment you share with your love, drink life every second you can, love like there will be no tomorrow!" *~*