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Old 09-28-2006, 03:16 AM   #5
roses4evver roses4evver is offline
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Join Date: Jul 2006
Location: Michigan
Posts: 150
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Re: Trying real hard to cope with SLE...

The question in one of the first posts was "Does Rheumie agree it is unsafe?" The answer is YES. I seeked out 2 opinions from orthopedic surgeons on my own without telling her...both said no KR for a very long time. I feel all the Dr's (ortho's & Rheumie) just dragged me along for the ride because they have a very hard time telling a patient...your life might as well be over.

My appt yesterday with one of them FINALLY came out & told me so. Saying my case was very rare, being someone who desperately needs a TKR & also having Lupus. Telling me how hard it was telling me know & how unfortunate it is that we as patients are bounced back & forth between Dr's because no one wants to tell you...the road ends. He told me they have a very hard time talking to a patient about their mortality. Why I ask myself? what I come up with is they want nothing to do with a patient "GIVING UP on life".....

I would like to know what other Dr's have to say in other area's. So if you all get a chance...ask your Dr's...for a friend.

Have a good day!
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~Roses~

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