Re: Dilated Aortic Root - age 28 and scared?
I have read a bit on Marfan's since the doctor's visit on Wed. However, I do not present with any of the phenotypes. Yes, I am tall (5'8") but that is not even "that" tall and I do have long fingers, but not really "abnormally" long. I do not have a taller than normal frame and my breastbone is about the size it should be. I have a lot of tall people (normal tall, not 7ft tall) in my family.
I guess any syndrome, however, can give you some attributes and not all of them. I just highly doubt I have this Marfan's if it presents the same way every time....I am sure some doctor out there in my life would have commented on how "large" my features were.
I hope to get all these answers when I meet with the Cardiologist next week - obviously I can speculate all I want to - but I need more data.
Thank you for you ongoing conversation. I appreciate you and anyone else who may respond.