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Old 04-15-2007, 08:41 PM   #1
Staar80 Staar80 is offline
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(female)
 
Join Date: Mar 2007
Location: united states
Posts: 177
Staar80 HB User
Unhappy i don't know where to turn

i don't know where to look for help. i have been to 7 dr.s and no one is helping me, i know something is wrong. please if anything sounds familiar, let me know.

it all started in AUGUST 8 months ago:

-i developed these red pimple sized bumps on uvula and soft palate. they were followed with smalled bumps all over the palate.
-low grade fevers started
-fatigue
-weight loss
-very sore throat and mouth. i was DX phanyngitis 2 times, the pain never went away with antibiotics.

SEPTEMBER
-it all continued and got worse
-back to DR, more antibiotics, pain never went away, not did the growths.
-glands started to swell

OCTOBER
-decided to get a new DR, because this guy was just telling me these viral things tend to hang on.
-saw ENT, in our tiny little backwoods town-he said HIV can do this to your mouth.
-tested negative at 3 months since last unprotected experience.
-glands still
-he also said he thought it was STD
-went to gynecologist, tested neg. for all STD's. she sent me to big city hospital.
-my face, breasts and arms turned beat red for weeks.
-low grade fevers continued.
-night sweats

NOVEMBER
-fevers still
-strep throat
-glands
-aches and pain
-i felt like there was poison coarsing through my veins, it was an effort just to walk my kids in school
-new ENT biopsied my mouth, and it came back as hyperplastic squamous mucosa-he had no idea what caused it, but that it was benign, for now.
-burning on tongue
-night sweats

DECEMBER
-more fevers.
-swollen glands still
- hit a 39lb weight loss in 3 months.
-started to inprove a little
-mouth problems never improved

JANUARY
-again neg for HIV, ENT said that is not the problem
-tonsillectomy and adenoidectomy
-fevers
-oral thrush
-started to gain weight back

FEBRUARY AND MARCH
-everything listed above, no changes

APRIL:
- again conclusively HIV negative-ID confirmed this with viral load testing. 8 months. she said definitey not.

NOW:
-back to square one. i do not feel right, i have had low(just barely) RBC, HIgh, then low WBC. HIC MPV? what ever that is?

-8 months lkater still swollen glands
-my chest is still red w/ raised bumps.
-still having fevers?

i also tested neg. for auto-immune, butstill have appt. w.rhumatologist and dermatologist

also 4 yrs ago i had granuloma annulare on legs

someone please help