Re: Q Fever?
I am sorry to hear you are not feeling well. I have tested positive for chronic Qfever antibodies as well. I had a terrible, terrible spell of fever/mono'sh type symptoms about 16 months ago now. I felt just absolutely horrible. The doctors had no idea what was going on and I was given antibiotics, thankfully during that time. And, Levoquin actually made me feel a little bit better and knocked out my fever. But, I had and still have lingering issues. Went to doctors continually for another 16 months to get diagnosed about six months ago with the antibodies for Qfever. Then, I finally get diagnosed last month with Lyme as well. My antibodies for Qfever, when I was first tested were very, very low. Infectious Disease doc said that it looked like I cured myself (I believe now that is was the Levoquin given to me at the right time that did it).
Anyway, as a result of all of this, I have Fibromyalgia, Encephilitis of the brain, chronic fatigue, SVT heart arrythmia, and possibly sarcoidosis.
I don't have a fever. Nor have I had one since my original bad sickness.
I am currently on Minocycline and Zithromax. I too cannot take doxy, I had a very bad reaction to that. I am also on Plaquenil because I also have gone autoimmune from the infection.
There are about 4 or 5 other people on this board diagnosed with chronic Q fever.
I was seeing an infectious disease specialist for my Q fever. I had a PCR done on my blood for Qfever that came back negative and a PCR done on tissue removed via biopsy that also came back negative. This is was prompted me to see a Lyme Literate Doctor who diagnosed me with Lyme. She believes that I got Qfever and Lyme from the same tick bite. And, I believe she is correct.
You are right in that there seems to be no real experts here in the US. The experts are in Australia and France.
My infectious disease doctor is very famous. And, when I saw him last, he said that he treated a Saudi Arabian prince who had a fever for over a year. This guy came to see him and my infectious disease doctor diagnosed him with Qfever. Doc says they have alot of Qfever in Saudi Arabia from the camels.
Anyway, if you are willing to travel, my doc is in NJ. He told me that he finds about 2 cases/month of Qfever here. Let me know and I will give you his name.