I understand how you feel and it always puts a lump in my throat when I read words like yours because sometimes I feel very alone with this, I've never met anyone else with PET only those on this site.
I've had it for 4 years or so, for a while I was obsessed with finding a cure, I couldn't believe that there wasn't something out there that could be done about it..and maybe there still is..but now I want to get on with living my life and try to be happy..and it's the best thing I could have done, don't let it take over you. It took me a long time to realise that.
I have to go now because I've finished work. Drop me a reply if you get this and we can discuss coping strategies.
Till then take care.