I have just been diagnosed, through a muscle biopsy, with mild myopathy consistent with polymyositis. The neuro didn't seem concerned, just handed me a script for prednisone and said I needed to take it for 4-6 months. The rheumo couldn't believe the biopsy showed anything and questioned it.....as if I don't really have the symptoms and feel as bad as I do!
I feel very scared and lost. I don't know what is in store for me and after one dose of Prednisone I wonder how I can make it through even a week of it.
Not one of these docs has examined me in a gown, they only see my arms and legs. Otherwise they would know I have turned to mush.
Any suggestions as to how I can handle this terrible Prednisone? I have fast heart rate, feel anxious, woke up at 3 am and again at 5 and stomach burning. I'm really scared and just want to go back to normal. The symptoms started a year and eight months ago and, being a single mom, it is killing me! Thanks for any help.
Last edited by ltr; 07-26-2007 at 03:10 AM.