Thread: Just diagnosed
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Old 07-26-2007, 03:10 AM   #1
ltr ltr is offline
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Join Date: Jul 2007
Location: elmira ny us
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ltr HB User
Just diagnosed

I have just been diagnosed, through a muscle biopsy, with mild myopathy consistent with polymyositis. The neuro didn't seem concerned, just handed me a script for prednisone and said I needed to take it for 4-6 months. The rheumo couldn't believe the biopsy showed anything and questioned it.....as if I don't really have the symptoms and feel as bad as I do!

I feel very scared and lost. I don't know what is in store for me and after one dose of Prednisone I wonder how I can make it through even a week of it.

Not one of these docs has examined me in a gown, they only see my arms and legs. Otherwise they would know I have turned to mush.

Any suggestions as to how I can handle this terrible Prednisone? I have fast heart rate, feel anxious, woke up at 3 am and again at 5 and stomach burning. I'm really scared and just want to go back to normal. The symptoms started a year and eight months ago and, being a single mom, it is killing me! Thanks for any help.

Last edited by ltr; 07-26-2007 at 03:10 AM.