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Old 10-27-2007, 04:45 AM   #3
neurowreck neurowreck is offline
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Join Date: Jul 2005
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Re: Four Episodes Already This Week!!!

Everyone has different triggers, and the sort of universal ones of sleep deprivation, stress, infections, drinking, for some women- their periods, etc.

Maybe meds need to be tweaked a bit by your doc??? I know when I was put on medical leave, and then disability, medication dose changes decreased how frequent (unfortunately not enough to be employable), but at least I could have some decent days without that 'hit by a bus' feeling.

The sound of flourescent lights makes me edgy enough to push me over the edge of my seizure threshhold, IF I'm already dealing with other triggers. For me, infections are a huge issue (usuallly bladder), and I keep 'foreign' antibiotics around for weekends when I can't get to the MDs office, just to hold me over until I can- not saying this is a good plan, but for me, it's an emergency only deal until my own MD is in the office. I can't take a lot of antibiotics because of the blood thinners, so having this one around can at least keep the worse days at bay. (dealing with that this weekend). I may be able to get into the urgent care clinic later today.

I had days and weeks/months where I'd have runs of really bad times with the seizures, and with some med tweaking by the doc, it helped- there's still hope. I was called refractory, and no surgical site to be an option... I don't think I'm necessarily 'refractory', but there were times when it was worse. Now, I'm down to 5-8/month, with some of those at night- so wake up feeling run over, and with my mouth gnawed on the inside of my cheeks- those leave the rest of the day sort of draggy.....but still better than 5-8/week.