I'm new to this board, but am so glad I've found you! I've read through many of the other threads with the same condition and already feel like it's nice to be able to talk to those who've walked through this fire. A little background:
My daughter (21) was recently diagnosed with AVN/ON of both knees and her right elbow. I've contacted a doctor who specializes in protecting the joints before they collapse, contrary to what most docs do it seems. He wants to get additional xrays/MR's of both shoulders and hips just to be sure.
About a year an a half ago, she had a sudden, vicious onset of Ulcerative Colitis that eventually resulted in a total colectomy with continent reconstructive surgery. During that time, she was on steroids to try to bring it under control, which is where the AVN has come from. I'm so devastated by this and am so angry I just feel like I'm going to implode sometimes.
Has anyone here with AVN tried to bring legal action against the drug company for lack of disclosure? When she was put on Prednisone, I feel like I did my homework and consumed all the info in the product monograph that came from the pharmacist. I also read an entire book on it and nothing in there said she may get AVN/ON...it did say a risk of osteoporosis, but in my book, these are two different issues. Even the NIH webpage and the official Prednisone website does not talk about this. It's only when you link Prednisone and AVN together when you do a search that you come up with this risk. I'd love to hear from others and if you have any information to pass on, I'd greatly appreciate it!
Mom of 21yo daughter with AVN of both knees, right elbow and possible other places.
Being evaluated for treatment options.