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Old 04-06-2008, 06:35 AM   #1
katmuskie katmuskie is offline
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Join Date: Apr 2008
Location: Decatur,Tx USA
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Question MCTD !!! ANY and ALL help will be greatly appreciated !!!!!

I have been RX'd with MCTD..This has been a heck of a rollercoaster ride.It started in 1998 as FMS,then Plumervinson Syndrom,then COPD,Lupus now MCTD. My labs have been ANA+ for awhile with a speckled pattern now they are coming back with a U1RNP+ with high Teters , etc all my #'s are way too high (or low).Does anyone out there know anything about this disease.Any help would be appreciated. I eat a very well balanced diet, vitamins, 5 different types of steriods (ugh and still am losing weight) they have tried Lyrica,Clozapam,Tramadol, Ampatrypaline, and on and on. Some days I can't hardly move,or breath,my kidneys are showing protein, basicly my connective tissue is turning to stone..enough whining IF ANYONE knows of anything please let me know....Thanks

have been to Rhuem,Endrocorn,Pulmon, Internal Med, Infectious etc they just are biopsy freaks with the same conclusion.. Not sure what to do