Hi zoey, i am sorry to read you are going through all this and it certainly doesn't help when neuro's doubt your complaints either, i had the same attitude off the first neuro i seen too, turned out he didn't even know the correct test to do to measure those particular nerves i was complaining about, a real ripe goose.
I hope they can find the cause at the Mayo clinic, i believe they do have some very good neuro's there, best of luck anyway.
Aussie
