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Does anyone else get these vibration sensations under their skin when sitting still or as you are waking up? It is like my flesh is quivering under my skin.
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The descriptions of the sensations are so hard for all of us to put words too!
Perhaps you are talking about the sensations of Paresthesia.
Here's a link for the National Library of Medicine about that.
[url]http://www.ninds.nih.gov/disorders/paresthesia/paresthesia.htm[/url]
I tend to call mine the "creepy crawlies" of "Bugs crawling all over my skin"
I do not have the extreme problems you have with your PN.
I have to say my PN is VERY mild compared to most of the what others on these boards expience. Mine is idiopathic but "mostly" under control simply by a very very small dose generic Neurontin. So many people have such bad problems with PN, that I feel very lucky.
I do hope you find an answer.