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Old 07-13-2008, 07:45 PM   #2
red64 red64 is offline
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Join Date: May 2008
Location: sc,usa
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Re: Pituitary Tumor?

I am scheduled this thursday for a second MRI - stella test, this time with contrast for a pituatary tumur.The first MRI w/o contrast showed nothing. I have had 5 breast surguries on my left breast due to lactation, if I don't express the milk, white thick substance then it builds up and clogs my milk ducts and I have to have it surgicaly drained. I have severe breast pain in both breasts. I have been this way for 14 years.

My first surgery was in "95" the doctor said they could remove my milk ducts but not if I wanted more kids, which I did, I had another child in "97" I had surgeries in 95, 96, 97, 98, & 08. It wasn't until 2008 that someone mentioned the possibility of a pituatary tumur to me. All these years of suffering and 4 different surgens and not one of them said anything to me about it. In fact it was a nurse in the hospital this last time who mentioned it to me, not the doctor.

My new GP sent me for a CT scan with dye and found a left adrenal ademadoma which comes from low cortisol levels from your pituatary gland. Prolactin is what you produce to lactate to much makes you lactate too little and you don't. But my prolactin levels are low and I still do so you can't always go by that.

My 24 hour cortisol urine test was 4.7 which is low but within normal range but I have been getting steroid injections most of my life I'm 43, and if it wasn't for the injections I wouldn't even had made it to that range so it shows that my pituatary isn't making enough by itself.

I suffer with wide spread aches and pains, headaches, memory problems and double vision. I went to the eye doctor and he told me that I have less then 50% of my left field vision which is a sign of pituatary tumur. Left eye, left breast - he said that the pituatary glands sits on top of your head one on each side and they are really close to the optic nerve and if a tumur grows they push on the optic nerve which can cause double or blurred vision or severe headaches. I currently take imatrex it helps but I get them every day and you only get 9 pills in a script so not practical.

I don't know what all labs tests where ordered and if the 24 hour urine cortisol tested was done, where you collect your urine at home for 24 hours and return it to the doctor or lab. but that and a MRI with contrast or a stella with contrast from a nuerologist is the way to go, because a regular GP doesn't have the knowledge to order the right test or know how to read them.

Good luck and next time try posting on the thyroid or brain board that's more along there line of expertise.
Red