Re: just don't know what to do
Some of us found that meds were ineffective or made our conditon worse. But we have still found effective treatment...some of us discovered that certain medications (for other conditions) made our symptoms worse and by eliminating those meds our symptoms disappeared. And some of us benefited by eating a well balanced diet with lots of fruits and veggies. Magnesium, potassium, and calcium (magnesium in particular) supplements also helped many.
In my case. I believe a water pill (diuretic) contributed to an electrolyte imbalance. Once I stopped the water pill, my symptoms lessened. Magnesium supplementation seems to have "cured" the remaining symptoms.
You might want to read some of the older posts for more info.