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Old 09-11-2008, 11:53 AM   #3
CJs Mom CJs Mom is offline
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Join Date: Mar 2006
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Re: Toddler MD Symptoms *Please Help*

Hey espen19,
Not trying to scare you either, but, I agree with Mark. You should get your son into a MDA clinic for testing, as soon as possible, because usually it takes weeks to get in. You could also have your regular doctor test his CK (muscle enzyme) level by doing a blood test. NO, blood tests are not fun for little children, but they can possibly give you answers. My son is almost 6 and we were diagnosed with a type of limb girdle md 3 years ago, so none of the testing is fun, but it is something that has to be done. Since I have "been in your shoes" in the past, I'm sure you want to know as soon as possible what is going on with your son, and once you know what it is, you can start treating it. Hope this helps in some way, we all know what you're going through right now, and I will keep you in my thoughts and prayers.
Lori