Both pam and ck:
I know this is no fun, and I feel 100% for both of you, but I think personally, that while all these drugs will help the symtoms they still are not helping the actual cause, althogh in some cases they actually may, have either of you had any other tests, are your necks and spines ok? Also if a particualr drug does help them it may help us find the answer quicker of the actual problem, cause if one drug helps, just look to what it tells your body to do differently and then look to see why your bodie is making the error in the first place.
Also: Did either of you take accutane (it can cause in increase in intercranial preassure), um, did you have your wisdom teeth pulled, how are your jaws any tmj that might be adding problems, I know myself I have a terrible overbight, and when i turn my head in certain ways I get a crunching sound in my neck. Anything else physical around the time the symptoms started?
The reason klonopin worked for me is that it seems to relax all my musles that are being told by something else to clench up, (probably because my brain is telling them everything is moving) when i stop the klonopin they all start crushing my eyes and neck, etc. all over again. Also a doc had said once that it also tells your brain not to listen to excessive input from other areas, otr at least thats what I interperted...