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Old 03-25-2009, 10:30 AM   #3
Peggy L Peggy L is offline
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Join Date: Nov 2008
Location: Wadena, Minnesota, USA
Posts: 17
Peggy L HB User
Re: Prednisone here i come! help...

I have diffuse scleroderma and was put on prednisone at the beginning of my treatment. I was on it for a very short time as I had a terrible reaction to it. To begin with I couldn't rest or sit at all. I was up 24 hours a day and couldn't stand it. I would never go on it again as the feeling of being so jittery and hypped up was absolutely terrible. I wish you luck but if you start to feel any bad reactions to it don't hestiate to wean off of it as soon as you can. Once you are on this it's really, really hard to get off of it. I know of alot of sclero patients that wean off of it when they've been on it for a while and have such a terrible time doing that.

Warm hugs,

Peggy