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Originally Posted by bluelakelady  it's not a guessing game it is a ruling out game. that takes time and tests. for your sake i hope it is not rheumatoid arthritis or osteo. fibro is still a tough call for any doctor. there just isn't a test yet to confirm it. they, like us are walking blind in a sense. have patience and be persistant.
i know the nausea well, and the emotional out bursts of "not me" words. in time you will be better at being aware ahead of time and those emotions won't swallow you up. often my feelings were raw and felt out of control. not so much anymore. i suppose i have learned to live as i am with joy in my heart for each waking moment, even if that moment is full of pain. |
Yeah, I guess alot of the outbursts have to do with just being pain, but I also spoke with someone about it and they think it may be hormones as well. I had a partial hysterectomy about four years ago, leaving one ovary. I don't know maybe I'll make an appt. to see my gyn for that just in case.
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Originally Posted by bluelakelady when do you see your rheumy again? remember doctors are tools we use. they are not a faith we have to trust or believe in. they just have to be open minded, know how to listen, and be willing to look deeper every time we ask them to. i fired alot of doctors in my search for the right team to work for me. i have alot of doctors and they all know they work for me. i am the team leader. my body. that makes me the boss.
hang in there. it is a journey. are your family supportive? are your kids old enough to help you out with the "stuff" around the house? i have 5 kids, all grown and raising their own babies. giggle, some of my babies, babies are teens now. how time flies.
peace,
bluelakelady |
I am not supposed to see him again for six weeks. I think I am going to try for a second opinion. I mean it may be fibro, but the severe back and hip pain make me wonder. Plus I have pitted fingernails and after hearing on tv they are the window to our health I looked it up and Psoric (sp) arthritis came up..Mabe I am overthinking it, but I am just so tierd of this constant pain. Even going on the fieldtrip with my son to the children's museum really upset me. Watching the other parents standing around talking...I couldn't..I could stand for a few minutes, but then have to sit, then have to stand...it made my eyes tear up just thinking, wondering is this going to get worse..
Oh and rheumatoid has been ruled out.
Thanks for talking with me blue, if it wasn't for you I would feel very ignored and it is comforting to have someone listen.
They need a hugging smilie here.(((hugs blue)))