Re: New here...and so fed up
Smashing, hi & welcome. I'm just a patient, obviously. But your comment about severe kidney pain & blood in urine jumped out. I *think* the kidney "filtering" damage caused by lupus is described as asymptomatic, meaning one doesn't feel pain.
But OTHER kidney & urinary conditions (seen in people with & without lupus) could produce pain, fever, nausea, etc. For example: infection, UTI that moved up to the kidneys, stones, interstitial cystitis, and (I suspect) many other problems I know nothing about...
It's not normal to pass blood, or to feel such pain in the kidneys. Can you get your kidney/urinary symptoms looked at again soon, meaning NOW? Please let us know how you're doing. I hope you get some answers & help fast. GOOD LUCK! Sincerely, Vee (P.S. I'm not saying a rheumatologist is a bad idea. I'm suggesting you see OTHER specialists, too!)