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Old 05-05-2009, 08:41 AM   #1
toy23 toy23 is offline
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Join Date: May 2009
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So many symptoms, but no diagnosis

My problems began in January of 2007, I had vertigo so bad that I could not move. I went to the ER were a CT scan was done they said it was normal and that I probably had a viral infection. This lasted about a week. Then things seemed to go back to normal for a while.

In the past two years I have had brief periods of episodes that I was able to deal with on my own. I convinced myself that there was nothing wrong with me. I always had an explaination for my episodes. I slept wrong, that's why my hands and feet went numb, or I have a pinched nerve, that would explain the pins and needles. When I would lose my balance or trip and fall I thought I was just being a klutz etc. I never gave ms a thought.

Reality hit me in the face this past February. On the 6th of February, when I was at work I had a pain that hit behind my left eye that felt like I was stabbed. It only lasted a few seconds but it was immediately followed by symptoms of a stroke. I was rushed to the hospital were they did a CT scan and ruled out a stroke and diagnosed me with an opthalmic migraine and sent me home. All weekend my whole left side was weak and numb, my balance was off and I was exhausted. On Monday, I was awakened by the worst headache I have ever had. I could not lift my head without crying out in pain.
Back to the ER>diagnosed complex migraine. Next day, the same thing happened but they did an MRI said it was normal, gave me IV pain meds and a corticosteriod and told me to see a neurologist in 2-3 due the the severity of the migraines. After being given the medications I developed tremors in my head and trunk region. I still have them now but they are not as severe.

I went to the neuro on February 13th. He did an exam and told me that he looked at my MRI and didn't see anything other than a very small arachnoid cyst and he stated that given all the symptoms I have MS is a possibility but since I have no lesions on my brain he did not feel the need to order any additional testing. He gave me a sleeping pill, and told me the tremors were due to the steriod and to call him on Tuesday if I was still having them.
By the time Tuesday came I was worse so I called him and he said give it a week because the steroids could still be in my system. I waited 2 weeks and called him back, when I saw him again he put his hands in there air and said "I don't know what it is, but take this medicine and it should go away"
He gave me klonopin and it did not work. Finally on March 5th, I had enough, when I woke up that morning my vision in my right eye was gray and fuzzy, I went back to bed and when I woke up I could see but everything was blurry. I told my husband to take my to a different hospital and if they wouldn't due anything for me I was going to commit myself I couldn't take it anymore. I was admitted by the ER immediately. He walked in, took one look at me and said "this is neurological, and you are being admitted now" , the neurologist that saw me in there told me that I need to go to a movement disorder clinic and she couldn't do anything for me. After being pumped full of Ativan for 5 days they sent me home, and told me to follow up with my GP.

I went to my GP on March 27. She did a physical on me and actually listened to everything that I had to say, she told me that based on all the info that I had given her, the first thing that came to her mind was MS, but she wanted to do some bloodwork to check my thyroid and she wanted to get all my charts from the neuro, and the hospital. She also told me to keep my appointment with the movement disorder clinic so that we can get the tremors under control. All of my bloodwork came back ok, so now we are just waiting until my appointment next week and see where to go from there. She was furious at the way the neuro treated me and told me that I will not be going back to see him again, and that I was not the first person that told her negative things about this Dr.

So for now, I am stuck in limboland, and hopefully within the next couple of weeks I will be in a better place than I am now.