I'm new to this so am still not sure if i am doing the right post or whatever!!
Anyway, I have recently been diagnosed with Chronic Progressive External Opthalmolplegia after having many tests and a muscle biopsy. I am 15 years old and just wanting some more information about it from people who actually have it instead of one of the many consultants i have seen who just give way too much confusing detail!
Im expecting an operation sometime this year to lift my eyelids but at the moment i still know little about this!
Anyone had any experience of this operation or of the disorder?
Any comments would be appreciated
Thanks, Nat x