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Nat101 · 05-16-2009, 04:05 AM

Hi everybody

I'm new to this so am still not sure if i am doing the right post or whatever!!

Anyway, I have recently been diagnosed with Chronic Progressive External Opthalmolplegia after having many tests and a muscle biopsy. I am 15 years old and just wanting some more information about it from people who actually have it instead of one of the many consultants i have seen who just give way too much confusing detail!
Im expecting an operation sometime this year to lift my eyelids but at the moment i still know little about this!
Anyone had any experience of this operation or of the disorder?
Any comments would be appreciated

Thanks, Nat x

05-16-2009, 04:05 AM	#1
Nat101 Newbie (female) Join Date: May 2009 Posts: 3	CPEO information Hi everybody I'm new to this so am still not sure if i am doing the right post or whatever!! Anyway, I have recently been diagnosed with Chronic Progressive External Opthalmolplegia after having many tests and a muscle biopsy. I am 15 years old and just wanting some more information about it from people who actually have it instead of one of the many consultants i have seen who just give way too much confusing detail! Im expecting an operation sometime this year to lift my eyelids but at the moment i still know little about this! Anyone had any experience of this operation or of the disorder? Any comments would be appreciated Thanks, Nat x Last edited by Nat101; 05-23-2009 at 06:39 AM.