Hiya JJ,
Reading your post, I am sorry but I am not sure whether you have an actual diagnosis of lupus or not, but yes chronic pain can be involved. Thing is though having an 'on the ball' rheumatologist if this is possible and the proper medications and help, should enable pain mangement to be sorted out for you.
As you know there are different types of lupus and only a rheumatologist can give a definite diagnosis and ultimately the right type of help you will need.
Take care
goldenwings